SIDNEY, OH- The Lehman Catholic High School Alumni Association is proud to announce the school’s eleventh annual Lehman Hall of Fame Induction. This year’s inductees include a former educator, a lawyer, two Lehman staff members, and a Piqua Catholic High School graduate.
The five distinguished individuals –John E. Ferman, John M. Garmhausen, Mike and Joyce Hughes, and Kenneth H. Schlater – will be honored at Lehman Hall of Fame festivities on Saturday, Saturday August 6, 2017.
Since beginning this tradition, the Hall of Fame committee has sought to honor not only alumni but outstanding faculty and supporters of Lehman Catholic. The Hall of Fame evening will begin with Mass at 5:15 p.m. in the St. Elizabeth Ann Seton Chapel on campus. Cocktails and hors d’oeuvres will be served at 6:00 p.m. with dinner to follow at 6:30 p.m. in the Virgil Heitmeyer Gymnasium. For tickets to the Hall of Fame Dinner, please contact Shelley Vanskiver at 937.726.2510 or firstname.lastname@example.org.
Our first inductee is John E. Ferman, a 1963 graduate of Piqua Catholic High School. John is the president of Chronic Pain Partners, (www.chronicPainPartners.com) a non-profit 501 (c)(3) organization. He created this national “EDS Awareness” program in 2011 with his daughter Deanna who is on disability with Hypermoble EDS. They help support, connect and educate those with a genetic disorder called Ehlers-Danlos Syndrome (EDS) and their caregivers.
John and his new bride of two years, are very active in their parish community at St. Susanna’s Catholic Church in MAson, Ohio. John has two children; Debirah Godwin and Deanna Hamm. John created the national “ED Awareness” program in 2011 with his daughter Deanna who suffers from Hypermoble EDS. They help support, connect and educate those with the genetic disorder Ehlers-Danlos Syndrome along with their caregivers.
Ehlers-Danlos Syndrome (https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome) is a genetic connective tissue disorder affecting collagen which supports skin, bones, blood vessels, and other organs. Defects in the collagen protein cause the multi-systemic signs and symptoms of Ehlers-Danlos Syndrome, which vary from mild to severely disabling, and sometimes life-threatening complications. Comorbidities may include: POTS/dysautonomia, gastroparesis, Chiari malformation, and more.
There are six major types of EDS: Hypermobility, Classical, Vascular, Kyphoscoliosis, Arthrochalasia, and Dermatosparaxis. The Hypermobility type (https://www.ncbi.nlm.nih.gov/books/NBK1279/) is the most common. Marfan Syndrome is an example of a connective tissue disorder having symptoms similar to Vascular EDS.
Prevalence estimates vary widely (https://www.youtube.com/watch?v=2SeZ9gOTIFE). Unfortunately, EDS is often undiagnosed or misdiagnosed due to a lack of education about the disorder. EDS experts believe that the actual prevalence may be as high as 1 in 500 to 1 in 100, and extrapolate that only 5% of EDS cases are being recognized.
John developed and singly manages the EDSawareness (www.edsawareness.com) web site to provide a method to help form and support local EDS groups. He has set up a network of more than 100 local EDS support groups in the continental US. 7 groups are in Ohio plus 3 in Australia, 3 in Canada, 1 in UK and 1 in Anchorage, Alaska.) He provides coaching and 6 web pages to promote their group. The program is totally free to users. Most members are on disability and have difficulty managing household and medical expenses.
John and his daughter host live webinars (http://www.chronicpainpartners.com/webinars/) typically twice monthly. These EDS medical experts from the US, UK, France and Italy span 18 specialties and address more than 50 topics affecting EDS patients.
John is now developing an online CME/CEU training program for doctors, nurses and physical therapists interested in learning more about treating “connective tissue disorders” like Ehlers-Danlos Syndrome.
There is an online article describing John’s relationship with his previous wife Carol who struggled with undiagnosed EDS for over 30 years. (https://www.rareconnect.org/en/community/ehlers-danlossyndrome/article/my-wife-had-eds-and-did-not-know-it)